Marjorie is one in a million
Fund-raiser nearing magic milestone
MARJORIE Dix is aiming to become a millionaire – and to give it all away!
This is the target of the Barnstaple charity fund raiser, who has already reached an amazing �840,186,37p and, at the age of 88, is determined to push that to the �1 million mark.
Marjorie has been raising money for the Myasthena Gravis Association since 1973 and was in 2005 awarded the MBE for her efforts.
She has herself suffered from the rare neuro-muscular condition since she was a teenager and tells her story this week to highlight Rare Disease Day on February 28, an annual event to raise the awareness of policy makers and the public of rare diseases and their impact on the lives of sufferers.
There are currently around 200 Devon sufferers from MG on the association’s database.
Marjorie has suffered from the ‘Rag Doll Disease’ for 70 years. It is a condition that causes a breakdown in communication between nerves and muscles, causing muscle weakness and paralysis throughout the body.
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One day a sufferer can do most things, the next they can be like a rag doll. Symptoms include floppy limbs, blurred vision, inability to chew, drink, swallow or speak audibly, sometimes even to breathe.
Recent medical research has resulted in more understanding and remarkable progress in treatments and management of the condition, but there is still no cure.
Marjorie has never been able to work, but has devoted many hours of her time to raising funds for the charity, which is funding research and working for a breakthrough.
Her efforts mostly involve letter writing and Marjorie’s passionate pen has been used to good effect, numbering celebrities and big companies among her contacts and benefactors as well as many friends and individuals.
Marjorie is also pleased to give talks to groups and organisations to help raise awareness of MG, although she will require transport to venues. She can be contacted on (01271) 372867.