A teenager from Barnstaple who has been forced to live in darkness is campaigning to highlight the impact of her illness.Hollie Cullen, 17, says she experienced negative reactions from both healthcare professionals and friends, who misunderstood her condition, myalgic encephalomyelitis (ME). ME causes chronic fatigue and sensitivity to sunlight. Hollie, who began suffering from ME when she was just eight years old, said: Growing up with ME was terrifying. I lay in darkness with no energy and in constant pain. The light sensitivity is really difficult because its pounding with this burning. There was a point where I thought it was the end and that I wasnt going to make it through Christmas. Not many people actually know what ME is. They think youre just tired and are using it as an excuse not to go to work or school, when actually its a severe and sometimes life-threatening illness. Hollie is working with Fixers, a charity which helps young people to speak out, to create coffee cup sleeves which share details of her experience, facts about ME and links to useful websites. Ceri Rutter from the Plymouth and District CFS\/ME Group supports Hollies campaign. I like the idea, she said. Its very distinctive and very simple. Its bringing out a message about a very complex illness. Fixers works with young people aged 16-25 and provides them with resources to help them campaign on issues they feel strongly about.Visit www.fixers.org.uk for more information.